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In April 2006, our son was diagnosed with a brain tumour, known as Juvenile Pilocytic Astrocytoma WHO Grade 1. This blog was started to keep family and friends up to date with our journey.


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CURRENT MOON

Not quite perfect

I wanted to say that today went perfectly (but I can’t). The past week has been far from perfect. The Boy has managed to have at least one headache every day, and the worst at night when he’s trying to go to sleep. He’s even accepted a couple of doses of paracetamol, as I mentioned last time. The other night he had trouble swallowing the tablet and vomited it back up, along with his dinner, and hasn’t tried since. Thankfully, since then, headaches have been less frequent.

Yes, I should be in bed now. We’ve missed out on a lot of sleep this week. I’ve developed the habit of finding excuses to stay up after he’s finally gone to sleep, and consoled myself with the fact that I’ve been up long enough to know he’s done his middle-of-the-night toilet visit, and that he is always feeling better by then.

So today he woke up feeling good. He walked to school with The Man and The Brother (I caught up a bit later), hung around at The Brother’s swimming carnival for a while, caught a bus to the cricket with The Man and played cricket on The Gabba. Along with a whole bunch of other kids and coaches, they did demo activities during the lunch break. Pretty exciting for them. I tried to get a glimpse of them on TV, but they didn’t show very much. Then they caught a bus back, we met up and did some shopping, then came home. All of this, on another hot day, with not a whiff of a headache. He said a shoulder was hurting, but we’re not sure what the story was there. His only other complaint was that he didn’t get a turn at bowling.

Tonight, just as he was getting ready to sleep, the headache started. It didn’t last as long as the other night-time ones have, but still not fun. He’s been asleep for a while now, and I should too, but I just wanted to update quickly. Thank you for the support we’ve received during this past week; very much appreciate, as always.

I suspect that in the morning he’ll be just fine. There’s a cricket game to play.

Posted at 12:31 am on  Saturday, 28 November, 2009 by  Margaret Email  ~  370 words ~ 139 views ~ Category: Milestones & highlights, Daddy, Public posts ~ 1 comment

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Comment from: Christie [Visitor] Email
More Hugs Margaret. To headache free days with much less worry.

All my love,

Christie
PermalinkPermalink Saturday, 28 November, 2009 @ 12:11

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